Welcome to this conversation among friends about Parkinson’s disease. A few members of the Parkinson Foundation of the National Capital Area – each one personally facing Parkinson’s – share their experiences. These friends are not experts in researching, diagnosing or treating the disease. However, they are experts on their own individual journeys with the disease, and excited to converse in that context. Hearing how a person responds to a situation can be helpful – even inspirational – to others.
Episode 1 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses “The Shock of It All”, their experience and the feelings involved with receiving a Parkinson’s diagnosis.
Episode 2 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses “The Truth of It All”, their experience and the feelings involved with telling others about their Parkinson’s diagnosis.
In Episode 3 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses “The New Normal”, or the practical considerations involved with moving forward after their Parkinson’s diagnosis.
In episode 4 or “The New Normal Pt. 2”, the group discusses the philosophical approaches to moving forward after diagnosis
In Episode 5 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses Carepartners. Titled, “I Get By With A Little Help From My Friends”, the group discusses adjusting to relying on a carepartner, the need for communication and community options after PD progression.
In Episode 6 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses working with healthcare professionals. Titled, “Doctor, Doctor, Give Us the News”, the group discusses their experiences with finding and working with healthcare professionals during their Parkinson’s journey.
In Episode 7 of “We’re All Shook Up: The Experiences of Living with Parkinson’s” the group discusses reinventing oneself. Titled, “Lost and Found”, the group discusses the mental journey post diagnosis. The acknowledgment of loss, but also the practice of evolving and adapting.
In this season’s final episode of “We’re All Shook Up: The Experiences of Living with Parkinson’s”, the group discusses their top 10 things to know about life with Parkinson’s and what they have learned to far whilst living with Parkinson’s.
PLEASE NOTE: Our panelists are speaking only in their personal capacity and only of their personal experiences. The Parkinson Foundation of the National Capital Area’s support does not imply their endorsement of what is discussed, and the views expressed do not represent the views of the Foundation. Our panelists will take great care to NOT recommend or criticize any medications, medical or therapeutic interventions, or professional services other than to narrate the personal experiences of the individual. The panelists today and in every session are volunteers.
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Additionally, PFNCA provides Parkinson’s exercise classes live, in person and online. Improve your quality of life by managing your symptoms in a fun and supportive environment with others facing Parkinson’s.
